Types of PCOS | How to Know Which One You Have

Polycystic ovarian syndrome (PCOS) isn’t a one size fits all diagnosis. There are different types of PCOS and each person can experience symptoms on a spectrum. Here we’re breaking down the different types, how to determine which one you have, and the best route for healing for each.

This is a guest post written by my functional CNP Julie Grafmeyer from CAPS Wellness Center. I’ve been working with her for years and she helped me reverse my PCOS symptoms. She’s worked with so many clients with PCOS and has a wealth of knowledge about it and I can’t wait to share this information with you!

FAQs about PCOS

How do I know if I have PCOS?

PCOS is a group of symptoms caused by an imbalance in hormones. The primary diagnostic criteria according to the Androgen Excess Society Criteria and the Rotterdam Criteria include:

• Irregular periods and/or polycystic ovaries on ultrasound 
• Signs (laboratory findings) or symptoms (such as acne or hirsutism) of high androgens
• And an absence of other causes of these symptoms.

How can I reverse PCOS naturally?

Once the diagnosis of PCOS has been determined, treatments including lifestyle modifications, supplements, and prescriptions, when necessary, help your body heal and find balance. 

In order to be successful with your treatment plan, focusing on the individual drivers or triggers for your unique PCOS is imperative. Your individual story can include more than 1 trigger, and even more than 1 hormonal disorder. 

I always recommend looking for the root cause of your symptoms. Start with the most obvious triggers, slowly peel back the layers, observe, listen, and learn from all the signals your body is sending you. 

The best resource for PCOS:

My favorite PCOS reference is The Period Repair Manual by Lara Briden, ND. Please use this amazing resource to help determine which type of PCOS you may have and possible treatment options to target your triggers.

General Labs for PCOS:

There are many different lab tests that help differentiate types of PCOS. Remember, lab tests are not required for the diagnosis of PCOS, and every person’s lab results and presentation is unique. Many people also have more than 1 trigger. You might have insulin resistance, inflammation issues, thyroid disease, and vitamin deficiencies!

Typical early screening lab work to evaluate for the diagnosis of PCOS include the following:

• FSH
• LH
• Prolactin
• Estradiol
• Total and free testosterone
• DHEA-Sulfate
• Fasting glucose and insulin
• Hemoglobin A1c
• TSH, Free T4, and Free T3
• Lipid panel
• High sensitivity CRP

Your unique presentation, symptoms, and story will often lead your provider to order even more in depth testing. All of these things come together to help determine which type of PCOS you primarily are dealing with. Check out more about Molly’s blood work here.

Here are the Types of PCOS:

Insulin Resistant PCOS

What is Insulin resistant PCOS?

Insulin resistance is the most common trigger for PCOS. High insulin instructs the ovaries to make too much testosterone, increases luteinizing hormone (which increases testosterone), and lowers proteins that are supposed to bind up free testosterone (which increases active testosterone in your body). 

One issue with insulin leads to at least three causes of high androgens. This is such a perfect example of root cause medicine. Focusing on treating the insulin. 

Red flag test results:

• Fasting glucose and fasting insulin results are above the optimal range. Ideally, your fasting glucose should be less than 90 mg/dl and your fasting insulin should be less than 6.0 uIU/ml. It is important to remember that “normal” lab reference ranges don’t always mean optimal ranges. To control PCOS symptoms, these numbers often need to be optimal, not just normal.

Treatments for Insulin resistant PCOS:

• Quitting simple sugars and minimizing carbs, even trying intermittent fasting or the ketogenic diet if it is appropriate for you, are some of the most powerful ways to lower your blood sugar and insulin. Here are some great low carb recipes. 
• Exercising and moving throughout the day allows your body to burn sugar and build muscle (which also burns sugar).
• Be sure to prioritize sleep and stress management. A lack of sleep and excess stress that isn’t managed will both lead to increased blood sugar.
• Supplements or prescriptions if necessary can be very helpful to help make you more insulin sensitive, lowering both your blood sugar and insulin.

Post-pill PCOS

What is post-pill PCOS?

Post-pill PCOS only presents after taking any form of hormonal birth control. The symptoms were not present prior to being on these medications. If you went on HBC because of symptoms and irregularities and experienced them after coming off, you may want to look into the other types of PCOS.

What does the pill do to your hormones?

These medicines suppress ovulation so that you don’t get pregnant and some women will experience an increase in androgen production temporarily after stopping birth control, which causes symptoms such as acne, hair growth on the body, or hair loss on the head. 

Hormonal contraceptives can cause or worsen insulin resistance. In some women these hormonal changes persist after stopping the contraception, causing symptoms consistent with PCOS. Beyond the Pill is a great resource to learn what HBC does to your body.

Red flag test results for Post-Pill PCOS

• Fasting glucose and fasting insulin results are well within the normal range
• Inflammation markers and symptoms are relatively normal
• High LH:FSH ratio

Treatments for post-pill PCOS

• Be patient
• Prioritize sleep, stress management
• Consider other specific supplements as directed by your healthcare provider to help lower androgens

Inflammatory PCOS

What is inflammatory PCOS?

Inflammation causes hormone imbalance by suppressing ovulation (so you don’t make progesterone) and increasing production of androgens.

Inflammation directly decreases progesterone and increases androgens, and inflammation causes higher blood sugar and insulin, which causes higher androgens and decreased progesterone production. 

Red flag test results

• Fasting glucose and fasting insulin results are within the normal range, but may not be perfect as inflammation can increase these numbers. 
• Inflammation markers, such as a high sensitivity CRP are elevated 
• And/or you have symptoms of inflammation such as joint pain, brain fog, gut issues, skin problems like acne or eczema to name a few. 

Treatments for Inflammatory PCOS:

• Minimizing sources of inflammation, especially inflammatory foods or foods you have sensitivities to, is the first step. Always start your treatment by removing the triggers, then add supportive tools such as turmeric or omega 3 fatty acids to help your body heal and recover. 
• Focus on optimizing gut health. Gut imbalances such as bacterial overgrowth, yeast overgrowth, chronic parasites, low digestive enzymes, and leaky gut are common sources of inflammation. 

Adrenal PCOS

What is adrenal PCOS?

This type may display similar symptoms to insulin resistant, inflammatory, and post-pill PCOS, but you do not have insulin resistance or inflammation issues, and your symptoms are unrelated to hormonal birth control. The adrenal organs are responsible for controlling the stress response. When the stress response is not balanced, hormones are not balanced.

Red flag test results

• All testing is essentially normal, other than DHEA-S which is the androgen produced in the adrenal glands. 

Treatments

• Prioritizing stress management by focusing on meditation, mindfulness, guided imagery or other stress management practices daily
• Prioritizing sleep
• Minimizing causes of stress including environmental toxins, over exercise, emotional triggers
• Supplements can be very helpful to help support the adrenal system and sleep

Other causes of PCOS

There are women who meet the diagnostic criteria for PCOS, but don’t have insulin resistance, inflammation or adrenal issues, and have not been affected by hormonal contraception. There is still a trigger for the symptoms, but it falls into this “other” category. 

Vitamin deficiencies, food intolerances, thyroid disease, and malnutrition are a few examples of causes. There are also women whose trigger is never found, but the treatments, especially lifestyle modifications are still very powerful at controlling symptoms. 

You are not alone.

Please remember, PCOS is a common hormonal disorder. You are not alone. The most powerful recommended treatments for all types of PCOS are lifestyle modifications. As you search for your trigger, start by working down this list, and as you go, listen and learn. You know you better than anyone else ever will. Use your intuition to guide your treatments, and seek medical advice along the way.

This flow chart was created by Dr. Lara Briden. She has a blog post about the types of PCOS as well and created this great graphic to explain how to narrow down which type you have.

General PCOS treatments that will help with any type of PCOS

1. Minimizing processed and refined simple sugars.
2. Minimizing inflammatory foods such as gluten and dairy. Learn more about an anti-inflammatory diet here.
3. Optimizing your gut health to keep toxins out of your body, clear your old hormones, and keep inflammation low.
4. Exercising regularly to burn sugar, build muscle, manage stress, and optimize sleep.
5. Prioritizing a consistent daily stress management practice such as meditation, mindfulness, guided imagery, or any version of self-care that speaks to you.
6. Sleep is a non-negotiable.

Here’s to happy hormones!

More of Molly’s posts about PCOS:

• Why I quit hormonal birth control
• Clean (non-toxic) makeup routine
• How to find a doctor that will help heal the root cause of your PCOS
• Getting pregnant with PCOS
• The Best PCOS Resources
• Seed Cycling for Hormones
• PCOS Supplements
• My anti-inflammatory diet
• Blood work for PCOS